Patient, Caregiver and Community Schizophrenia Educational Booklet 4

Year of Publication: 2021

These patient, caregiver and community schizophrenia educational, non-promotional materials were created to support awareness, knowledge and education about schizophrenia and its treatment.

Insights from patient journey mapping research that was conducted in Rwanda in 2018-19 were used to inform the development of the content. The Journeys of Hope program includes a series of (4) booklets.

Each book is anchored by character-based story-telling derived and adapted from real stories of people living with schizophrenia (through the research) while preserving anonymity and includes family members, Community Health Workers (CHWs), and others in community. Booklets include worksheets that initiate action planning such as goal setting, developing a social support network, remembering to take medication, and preparing patients and caregivers for follow-up appointments.

Booklet four prepares the patient for a long journey ahead; provides action planning and models behavior that leads to optimal long term outcomes.

In the first phase of distribution, the booklets will be distributed by Johnson & Johnson’s Rwanda-based Product Specialist, Blaise Ishimwe, to psychiatrists and psychiatric nurses at the (12) national and provincial public hospitals to then give to their diagnosed schizophrenia patients and caregivers and/or family families. In the second phase of distribution, the booklets will be distributed to health centers and CHWs, to give to patients, caregivers, families and interested community members.

These patient, caregiver and community schizophrenia educational, non-promotional materials were created to support awareness, knowledge and education about schizophrenia and its treatment.

Insights from patient journey mapping research that was conducted in Rwanda in 2018-19 were used to inform the development of the content. The Journeys of Hope program includes a series of (4) booklets.

Each book is anchored by character-based story-telling derived and adapted from real stories of people living with schizophrenia (through the research) while preserving anonymity and includes family members, Community Health Workers (CHWs), and others in community. Booklets include worksheets that initiate action planning such as goal setting, developing a social support network, remembering to take medication, and preparing patients and caregivers for follow-up appointments.

Booklet four prepares the patient for a long journey ahead; provides action planning and models behavior that leads to optimal long term outcomes.

In the first phase of distribution, the booklets will be distributed by Johnson & Johnson’s Rwanda-based Product Specialist, Blaise Ishimwe, to psychiatrists and psychiatric nurses at the (12) national and provincial public hospitals to then give to their diagnosed schizophrenia patients and caregivers and/or family families. In the second phase of distribution, the booklets will be distributed to health centers and CHWs, to give to patients, caregivers, families and interested community members.