Patient, Caregiver and Community Schizophrenia Educational Booklet 3

Patient, Caregiver and Community Schizophrenia Educational Booklet 3

Year of Publication: 

These patient, caregiver and community schizophrenia educational, non-promotional materials were created to support awareness, knowledge and education about schizophrenia and its treatment.

Insights from patient journey mapping research that was conducted in Rwanda in 2018-19 were used to inform the development of the content. The Journeys of Hope program includes a series of (4) booklets.  

Each book is anchored by character-based story-telling derived and adapted from real stories of people living with schizophrenia (through the research) while preserving anonymity and includes family members, Community Health Workers (CHWs), and others in community.  Booklets include worksheets that initiate action planning such as goal setting, developing a social support network, remembering to take medication, and preparing patients and caregivers for follow-up appointments. 

Booklet three is intended for extended family and caregiver of persons recently diagnosed with schizophrenia. This booklet normalizes the condition for teh extended family members, sets expectations for recovery, models supportive behavior, and aids in family reunification.

In the first phase of distribution, the booklets will be distributed by Johnson & Johnson's Rwanda-based Product Specialist, Blaise Ishimwe, to psychiatrists and psychiatric nurses at the (12) national and provincial public hospitals to then give to their diagnosed schizophrenia patients and caregivers and/or family families. In the second phase of distribution, the booklets will be distributed to health centers and CHWs, to give to patients, caregivers, families and interested community members.

These patient, caregiver and community schizophrenia educational, non-promotional materials were created to support awareness, knowledge and education about schizophrenia and its treatment.

Insights from patient journey mapping research that was conducted in Rwanda in 2018-19 were used to inform the development of the content. The Journeys of Hope program includes a series of (4) booklets.  

Each book is anchored by character-based story-telling derived and adapted from real stories of people living with schizophrenia (through the research) while preserving anonymity and includes family members, Community Health Workers (CHWs), and others in community.  Booklets include worksheets that initiate action planning such as goal setting, developing a social support network, remembering to take medication, and preparing patients and caregivers for follow-up appointments. 

Booklet three is intended for extended family and caregiver of persons recently diagnosed with schizophrenia. This booklet normalizes the condition for teh extended family members, sets expectations for recovery, models supportive behavior, and aids in family reunification.

In the first phase of distribution, the booklets will be distributed by Johnson & Johnson's Rwanda-based Product Specialist, Blaise Ishimwe, to psychiatrists and psychiatric nurses at the (12) national and provincial public hospitals to then give to their diagnosed schizophrenia patients and caregivers and/or family families. In the second phase of distribution, the booklets will be distributed to health centers and CHWs, to give to patients, caregivers, families and interested community members.

If you plan to use or adapt this resource you must get permission from the organization. Please contact spelletr@its.jnj.com